{"id":2261,"date":"2023-07-13T09:34:51","date_gmt":"2023-07-13T09:34:51","guid":{"rendered":"https:\/\/avaeh.org\/web_nueva_2021\/?p=2261"},"modified":"2023-07-13T09:34:52","modified_gmt":"2023-07-13T09:34:52","slug":"actualizacion-sobre-ensayo-pivot-hd-de-ptc-therapeutics","status":"publish","type":"post","link":"https:\/\/avaeh.org\/web_nueva_2021\/2023\/07\/13\/actualizacion-sobre-ensayo-pivot-hd-de-ptc-therapeutics\/","title":{"rendered":"Actualizaci\u00f3n sobre ensayo Pivot-HD de PTC Therapeutics"},"content":{"rendered":"\n<p>La comunidad Huntington hispanohablante pudo compartir ayer la tarde con la Dra. Amy-Lee Bredlau y la Dra. Iria Nieto de PTC Therapeutics. Con 170 inscripciones al webinar de diferentes nacionalidades.<\/p>\n\n\n\n<p>Escuchamos la intervenci\u00f3n de la Dra. Esther Cubo, Investigadora Principal del Hospital Universitario de Burgos, y se aclararon las dudas junto con el Dr. Jose Luis L\u00f3pez-Send\u00f3n Investigador Principal del Hospital Ram\u00f3n y Cajal de Madrid, la Dra. Tamara Fern\u00e1ndez de Investigadora Principal del Hospital Universitario De Cruces en Barakaldo (Bilbao.<\/p>\n\n\n\n<p>Pronto publicaremos el v\u00eddeo del webinar y se podr\u00e1n informar de las actualizaciones y las conclusiones.<\/p>\n\n\n\n<p>Agradecer a la EHA-Moving Forward y FEPAEH por la organizaci\u00f3n.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"567\" src=\"https:\/\/avaeh.org\/web_nueva_2021\/wp-content\/uploads\/2023\/07\/ptc-therapeutics-2-1024x567.jpeg\" alt=\"\" class=\"wp-image-2262\" srcset=\"https:\/\/avaeh.org\/web_nueva_2021\/wp-content\/uploads\/2023\/07\/ptc-therapeutics-2-1024x567.jpeg 1024w, https:\/\/avaeh.org\/web_nueva_2021\/wp-content\/uploads\/2023\/07\/ptc-therapeutics-2-300x166.jpeg 300w, https:\/\/avaeh.org\/web_nueva_2021\/wp-content\/uploads\/2023\/07\/ptc-therapeutics-2-768x426.jpeg 768w, https:\/\/avaeh.org\/web_nueva_2021\/wp-content\/uploads\/2023\/07\/ptc-therapeutics-2.jpeg 1099w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>La comunidad Huntington hispanohablante pudo compartir ayer la tarde con la Dra. Amy-Lee Bredlau y la Dra. Iria Nieto de PTC Therapeutics. Con 170 inscripciones al webinar de diferentes nacionalidades. Escuchamos la intervenci\u00f3n de la Dra. Esther Cubo, Investigadora Principal del Hospital Universitario de Burgos, y se aclararon las dudas [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":2262,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[7,6,394,4,9,331,350,597,636,596,410,5,432,58,631,630,635,8],"class_list":["post-2261","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-sin-categoria","tag-asociacion-valenciana-de-enfermedad-de-huntington","tag-avaeh","tag-eha","tag-enfermedad-de-huntington","tag-enfermedades-raras","tag-ensayo-clinico-huntington","tag-european-huntington-association","tag-federacion-espanola-de-personas-afectadas-por-la-enfermedad-de-huntington","tag-federacion-huntington","tag-fepaeh","tag-gva-inclusio","tag-huntingtons-disease","tag-investigacion-huntington","tag-neurodegenerativa","tag-pivot-hd","tag-ptc-therapeutics","tag-ptc518","tag-rare-diseases"],"_links":{"self":[{"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/posts\/2261","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/comments?post=2261"}],"version-history":[{"count":1,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/posts\/2261\/revisions"}],"predecessor-version":[{"id":2263,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/posts\/2261\/revisions\/2263"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/media\/2262"}],"wp:attachment":[{"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/media?parent=2261"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/categories?post=2261"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/avaeh.org\/web_nueva_2021\/wp-json\/wp\/v2\/tags?post=2261"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}